Yes I am a mom to 2 preteens, lord help me, a wife to a amazing husband, a daughter to the most giving and loving parents, which one doesn't even speak to me. Oh well he is the one missing out and another discussion! A employee from 9:30-5:30, yes I am so lucky to start work at 9:30, that's why I can run so much in the morning. BUT today my job and only job today is to be a mother to my beautiful daughter Emily (12). She was born with a venous malformation on her right leg. A lot of veins involved and a lot of blood if anyone were to do any procedure on it. Many doctors in Texas would not even touch it. We came out to SC and after settling in, we decided to go ahead and see a doctor who specializes in the veins. We started with MRIs, then more doctor visits, we needed to do a angiogram of her right leg which we had to spend the night at MUSC Children's hospital. It was a long and exhausting procedure but needed to be done. Today we are at again. She will be admitted again for the 1st round of treatment (we hope) to shrink these massive cluster of veins. Its called Sclerotherapy. And you ask "what is that"? Well what they will do is inject diluted alcohol into these blood vessels to blast them and to shrink. She will be under anesthesia with a ultrasound guided visualization to see the veins. From what I was told they are injecting alcohol into her system, which mean yes she will be drunk. NOW I can see this as 2 ways.
1. This is give me a chance to see what kind of drunk she will be. I told her she better be a happy, funny drunk, if not well see ya:) j/k
2. This will give my husband and I a clue as to when she gets older and goes out, if she comes home drunk. You see we will look back on today and say, "yep shes drunk, she is acting the same way she did 5 yrs ago" lol.
But on a serious note, there are always risks. They can not get the alcohol on her skin. If this were to happen her tissue around her leg will start to die and then there would have to be a skin graft. But hey she has skin, somewhere and if she IF that should happen, I have PLENTY of skin she can have. Another risk is a blood clot can form and travel. Yeah scary and third is hyperpigmentation. Which is redness around the site.
They told us this one would be a little more painful but I am just praying for God's hand over the surgeons and everyone involved in Emily's care. I will update later on. I plan on getting a video of a drunk 12 yr old. Such a bad parent I know.. :)
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